I've always had good teeth. If I were a horse, I'd get high marks tooth-wise. But the fillings have created another story over the last several months.
The analysis of at least one of the scans (CT, PET or MRI -- I forget which...) done on my head and neck reported that the scan image was blurred in one particular area because the scan radiation was scattered by a filling (or, as it turns out more than one) in my teeth. And wouldn't you know that the area in question turned out to be very close to the location of the primary tumor. So there's always been a bit of doubt about the complete size and location of that initial tumor. (Which is why it has been such a delight to me that doctor after doctor -- and now a dentist -- have physically probed that area in the last several weeks and felt absolutely nothing that suggests residual tumor.)
The other issue with my fillings -- which I've blogged about several times -- was that the X-rays from the radiation treatments scattered off one (or as it turns out more than one) filling and created an ulcer that was extremely painful for months and made eating by mouth impossible. My throat was fine. My tongue was 8-out-of-10 painful when touched by anything. Including tap water.
(In case you missed this part of the story, my tongue has now healed completely. Yay!!)
So today, I was going to deal with this filling issue once and for all. I'd set up an appointment with my dentist, and I was going to have him remove the offending filling (because, in my mind, there had only been one offending filling) and replace it with a totally non-metallic one. One which would not scatter radiation.
(When I discussed this with my radiation doc, he assured me that I would never get any therapeutic radiation in that area ever again. That the bone and other tissue in my jaws had been so changed by the high-level X-radiation of my now-completed treatments that they would not handle any more. Ever. If the primary tumor re-appeared in my jaw area, alternative treatments would have to suffice.)
But I still wanted to have the cleanest possible scans of that area, so I felt that having the filling replaced was a sensible thing to do.
The first thing my dentist did was to take x-rays of my teeth. He assured me that the dosages from his x-ray machine were miniscule in comparison to those of my therapy, so... okay... I guess...
While the x-ray films were developing, he cleaned my teeth and we chatted.
When the films were ready, he popped them onto the screen and showed me how well my teeth were behaving, and that all the fillings were in great shape. He then was clearly ready to escort me back to the waiting room so I could pay my bill.
"But wait!" I said, "how about replacing the filling? Should we do that on my next visit or what?"
Now, he didn't actually say "Ooops," but he might have well done so. It seems that I had not fully explained the purpose of my visit, or the filling issue had slipped his mind or something. But in any case, it was clearly not on his agenda for the day.
So I explained the reasons why I thought replacing fillings was a good idea, and he looked over at the films, which were still hanging on the viewer. He said, "Well, my guess is that it would be that filling right there. Or possibly this one here. Or maybe the crown on this tooth here."
In short, the scatter issue was probably not caused by a single filling in a single tooth, but multiple pieces of metal in multiple teeth.
There were at least five teeth on that side of my mouth that could have contributed to the scattering issue. The dentist said, "If you want me to start over here by replacing that filling, then start moving across to the rest of these other teeth, I can do that. It'll take some time to get it all done, but it's up to you."
Hmmm... I don't think so. Maybe we just leave the teeth alone and be grateful that they are healthy and should last for the duration. Something about: "If it ain't broke..."
The blurry image from the scan/scattering issue will be there as always, but now, the possibility of a metasticized tumor showing up elsewhere -- away from my teeth -- becomes an issue at least as important. So we let the tooth-fixing issue go. At least for the time being.
Somehow, I find all this more confusing than it seems it ought to be.
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Randy, thank you for this update. It all makes sense -- the reason for wanting enamel in place of metal, the "oops" moment at the dentist's office, the realization that this quality-control step, which seemed like a wise move, now seems way more complicated than it's worth.
ReplyDeleteAnd I get how it seems more confusing than it should be. It's challenging enough to manage all the details AND the consultation with your agenda clearly in mind, but then you are thrown this multi-filling curve ball, in light of which you then must recalculate your agenda -- and all the factors that brought you to it -- and ask yourself the decision-making question: Is crystal-clear imaging at the primary site a survival move or just a "nice to have" quality-improvement move? And how are you supposed to know the answer to THAT question?? So I get the confusion. Might be worth posing the question to your medical team.
A clear view of the primary site seems important, but there may be other ways to monitor the site. My favorite part of your post today is this: "(Which is why it has been such a delight to me that doctor after doctor -- and now a dentist -- have physically probed that area in the last several weeks and felt absolutely nothing that suggests residual tumor.)" YAY!!!!!!!!!!!!!
And, yes, I agree 1,000 percent, a clear view of everywhere else, with a proactive, enlightened, science-based bead on those chemical pathways to confirm that they stay normal and clean and free of any indicators of metastasis -- that is the place to direct the medical focus.
I'm with you on all of this. You are a wise patient.
Hi Randy. Glad you posted. No pressure to post...I'm sure I'm not the only one who checks your blog more than once a day...again..no pressure to post. I look forward to reading whenever you happen to post and I waned to let you know that it really does matter to me what you have to say. I know I'm not alone in that.
ReplyDeleteCool that you've gotten excellent reports from two docs. and a dentist :) The cool thing about your fillings is that if at some point you change your mind and want to have them replaced, you can, but don't need to now or ever. (kind of echoing what Lisa posted)
I know some folks that don't like the mercury based fillings because they deposit mercury into the body...then others say that removing them actually creates more of a possibility of getting mercury into the body...not that this is your issue, but you can see how so many folks disagree what is most healthy,...so I applaud your going with your "gut" and your mind and heart in figuring out what is best for you at this time. Sending Love and Sweetness to you and Deb. Does NOT being able to drink / enjoying tap water seem like a thing of the past yet? I think it will! And Soon.
Love,
Diane